The HLH Across Speciality Collaboration (HiHASC) was set up in 2018 by Dr Jessica Manson (University College London Hospitals) and Dr Rachel Tattersall (Sheffield Teaching Hospitals and Sheffield Childrens’ Hospitals) as a professional network for HLH and hyperinflammatory medicine.
What is the basis for the link between Histio UK and HiHLH
HiHASC want to support Histio UK in providing patient resources and to support advocacy for people with HiHLH and their families. HiHASC does not have direct engagement with patients but the close relationship with Histio UK enables patient perspectives to be key in HiHASC professional network.
What is HiHASC?
The Hyperinflammation and HLH (haemophagocytic lymphohistiocytosis) Across Specialty Collaboration (HiHASC) is a network for healthcare professionals caring for people with hyperinflammation and/or HLH. It was set up in 2018 by Dr Jessica Manson (University College London Hospitals) and Dr Rachel Tattersall (Sheffield Teaching Hospitals and Sheffield Childrens’ Hospitals)
What is the purpose of HiHASC?
Hyperinflammation and HLH (HiHLH) are rare conditions with a significant risk of mortality. Patients can present to any branch of medicine and yet relatively little is known about them. This can lead to late recognition and delayed treatment. HiHASC aims to link up professionals in the UK with a common interest in HiHLH to enable cross-boundary and multi-disciplinary working to improve awareness of HiHLH.
Improving awareness of HiHLH will facilitate education and research and thereby improve the evidence base and care provided for people with HiHLH.