HLH Resources

HiHASC

Our research programmes provide a beacon of hope for the many children and adults battling Histiocytosis, to ensure this research continues we ask you to pledge your support.

Medical Guideline – Downloads

HLH-Guide-final-version-v1.1-July-2024.pdf (gettingitrightfirsttime.co.uk)

HLH Pathway FINAL V1 July 2024 (gettingitrightfirsttime.co.uk)

Working together to improve care and outcomes for people with suspected Haemophagocytic Lymphohistiocytosis (HLH)

(26th September 2024)

HLH Resources

HiHASC Outreach / Histiocyte Society 40th Conference in GOA November 2024.

2024 HS Improving outcomes for adults with HLH in the UK (PDF)

2024 Histiosoc poster nothing about us without us (PDF)

2024 build it and they will come abstract HistioSoc Goa (PDF)
NHSE commissioning policy for anakinra use in HLH – this guideline explains the use of anakinra in HLH but also provides an evidence based approach to funded UK treatments https://www.england.nhs.uk/publication/anakinra-for-haemophagocytic-lymphohistiocytosis-for-adults-and-children-in-all-ages/
International consensus based guidelines for the treatment of people with HLH (adults and children) in critical care published in 2021 (free full text) https://journals.lww.com/ccmjournal/Fulltext/2022/05000/Consensus_Based_Guidelines_for_the_Recognition,.15.aspx
International consensus guidelines for the management of adults with HLH published 2019 (free full https://ashpublications.org/blood/article/133/23/2465/273833/Recommendations-for-the-management-of

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